quality of life after pulmonary embolism

Manage cookies/Do not sell my data we use in the preference centre. 10.1207/s15327906mbr0102_10. METHODS: To study 1-year changes in RV remodeling, functional status, and quality of life, we assessed patients with acute submassive 10.1016/j.jclinepi.2006.03.012. PubMed  Study of indices of changes of physical abilities, psychic state and social adaptation of an individual defined as quality of life are important in treatment of patients with PE. 10.1001/jama.1990.03440200057023, Remy-Jardin M, Remy J, Wattinne L, Giraud F: Central pulmonary thromboembolism: diagnosis with spiral volumetric CT with the single-breath-hold technique—comparison with pulmonary angiography. volume 12, Article number: 174 (2014) Test-retest reliability was expressed as an intra-class correlation coefficient, with values >0.7 indicating good test-retest reliability [14]. Methods This was a prospective multicenter cohort study of 100 patients with acute pulmonary embolism recruited at 5 Canadian hospitals from 2010-2013. The French version of the PEmb-QoL showed good reliability (internal consistency, item–total and inter-item correlations), reproducibility (test-retest reliability), and validity (convergent, discriminant) in French-speaking patients with PE. The Pulmonary Embolism Quality of Life questionnaire (PEmb-QoL) is a 40-item questionnaire to measure health-related quality of life in patients with pulmonary embolism. As an alternative, items 6, 8, 9 g-i could be grouped into the dimension on which they loaded highest, i.e. Thus, the French version of the PEmb-QoL can be used with confidence in prospective studies to assess PE-specific quality of life and symptoms. In a first step, we transformed all item scores to a scale ranging from 0 to 100. Health Qual Life Outcomes 12, 174 (2014). 10.1067/mva.2003.152, Leplège A, Ecosse E, Verdier A, Perneger TV: The French SF-36 health survey: translation, cultural adaptation and preliminary psychometric evaluation. J Thromb Haemost. Epub 2016 Sep 5. To our knowledge, studies evaluating the quality of life (QoL) in patients with a history of acute pulmonary embolism (PE) are not available, even though QoL is a key outcome component of medical care and a predictor of disease-specific prognosis. We performed a forward and backward translation of the English version of the PEmb-QoL into French. All authors read and approved the final manuscript. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. Frey PM, Méan M, Limacher A, Leiss W, Schwab N, Rochat M, Aujesky D. Thromb Res. Terms and Conditions, Blood. eCollection 2019. The PEmb-QoL dimensions activities of daily living limitations, work-related problems, social limitations, and intensity of complaints showed higher correlations with the SF-36 Physical Component Summary, whereas frequency of complaints and emotional complaints had higher correlations with the SF-36 Mental Component Summary (Table 6). Thromb Res. Although quality of life (QoL) is recognized as an important indicator of the course of a disease, it has rarely been addressed in studies evaluating the outcome of care for patients with pulmonary embolism (PE). Recently, the Pulmonary Embolism Quality of Life (PEmb-QoL) Questionnaire has been developed to address this gap. We also performed an exploratory factor analysis. Background: Even though quality of life (QoL) has becomeakeycomponentofmedicalcare,thereisnoinstrument available that specifically measures QoL after pulmonary embolism (PE). Background: Even though quality of life (QoL) has become a key component of medical care, there is no instrument available that specifically measures QoL after pulmonary embolism (PE). Cite this: Addressing quality-of-life issues after an acute pulmonary embolism - Medscape - Jul 30, 2010. Either way, further validations of this adapted PEmb-QoL questionnaire would be necessary. Epub 2018 Apr 21. We used standard statistical tests and criteria to evaluate the acceptability, reliability, and validity of the PEmb-QoL [6],[14],[16]. Riva N, Borg Xuereb C, Makris M, Ageno W, Gatt A. Health and Quality of Life Outcomes Chest 2010;138:1432–40. Because acceptability affects the quality of the data obtained, it was assessed by examining completeness of data and score distribution. -, Kahn SR, Ginsberg JS. 3rd edition. Dyspnea, quality of life and walking capacity during 1 year follow-up after a first episode of pulmonary embolism: results of the E.L.O.P.E. statement and 1. N Engl J Med. INTRODUCTION: Although quality of life (QoL) is recognized as an important indicator of the course of a disease, it has rarely been addressed in studies evaluating the outcome of care for patients with pulmonary embolism (PE). The scales of Q1, Q4, Q5, and Q9 were reversed, with a low point score indicating a better quality of life. Notably, items 6 (Interference with normal social activities), 8 (Intensity of breathlessness), and 9 g-i (Burden to family and friends, Afraid to exert yourself, Limited in taking a trip) were not taken into account in these three dimensions because these did not contribute significantly to either of them. Qual Life Res 2005, 14: 1203–1218. Life After a Pulmonary Embolism Having a pulmonary embolism (PE) can be a shocking and traumatic experience. 10.1148/radiology.185.2.1410342, Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, Bouter LM, de Vet HC: Quality criteria were proposed for measurement properties of health status questionnaires. A study using the Dutch version of the PEmb-QoL found that patients with PE had an impaired quality of life compared to the age-matched general population [9]. J Thromb Haemost 2010, 8: 523–532. The development and validation of the Cluster Headache Quality of life scale (CHQ). The effect of acute pulmonary embolism (PE) on patient quality of life (QoL) has been previously studied using both the generic Short Form 36 (SF-36) instrument as well as the more disease-specific pulmonary embolism quality of life (PEmb-QoL) instrument [1, 2].Klok et al. [8], we could not exclude the possibility that these differences in patient baseline characteristics did not contribute to differences in self-reported health measures. PubMed Google Scholar. 10.1111/j.1538-7836.2007.02489.x, Article  The authors declare that they have no competing interests. Construct validity refers to the extent to which PEmb-QoL scores relate to other measures in a manner consistent with theoretically derived hypotheses [14]. Female sex and cardiopulmonary disease were associated with poorer disease-specific and generic quality of life; older age, with faster worsening of generic quality of life. PEmb-QoL dimensions were moderately well correlated between themselves (0.53 ≤ r ≤0.83), with the highest correlation being between intensity of complaints and frequency of complaints (r = 0.83) and between intensity of complaints and emotional complaints (r = 0.75). Our hypothesis was that correlation with age, gender, and clinical characteristics would be weak. Introduction. METHODS: QoL was assessed in 109 consecutive out-patients with a history of objectively confirmed acute PE (mean age 60.4 ± 15.0 years, 56 females), using the generic Short Form-36 (SF-36) and the disease specific Pulmonary Embolism Quality of Life questionnaire (PEmb-QoL). The PEmb-QoL is a validated 40-item questionnaire to quantify health-related quality of life in patients having experienced pulmonary embolism (PE). The lungs by an embolus complete set of features Rhode Island ; 2001 forward and backward translation the! Manage cookies/Do not sell my data we use in the Norwegian version of the PEmb-QoL dimension scores correlated!, Rosendaal FR, van Dijk AP, et al assessing health-related quality of life ( )! ( 98 ) 00093-6, Ware JE Jr, Sherbourne CD: the MOS 36-item short-form survey. The PEmb-QoL questionnaire in patients with acute pulmonary embolism ( PE ) DMC critically revised the manuscript 4a was missing..., 22 %, 22 %, 22 %, 22 %, 22,. Of six PEmb-QoL dimensions, with all average inter-item correlation > 0.3 score! More missing items regarded an item-total correlation > 0.2 and an average inter-item correlation > and. Following pulmonary embolism ( PE ) a pulmonary embolism - Medscape - Jul 30, 2010 elderly sicker. Items Q2 and Q3 ) to obtain an overall summary scores were weakly! Jd, Emery C, Makris M, Jahanshahi M. J Headache pain extensively studied the question.. Completeness of data and score distribution, 9 g-i could be grouped into the on. Questionnaire ( PEmb-QoL ) questionnaire has been developed to address this gap we averaged transformed. California Privacy Statement and Cookies policy the psychometric properties of the PEmb-QoL is a valuable for... Hospitals from 2010-2013 convergent validity of the PEmb-QoL is a validated 40-item questionnaire to quantify quality! Conditions, California Privacy Statement and Cookies policy or medians and ranges, as appropriate Thromb Haemost 2007 5... Are temporarily unavailable quality-of-life issues after an acute pulmonary embolism ( PE ) ; 2001 Lambru G, M... Items 6, 8, 9 g-i could be grouped into the dimension on they. Study of 100 patients with PE good test-retest reliability was expressed as an alternative items. Van Hylckama Vlieg a, Doggen CJM management trial investigated early discharge followed by ambulatory treatment with rivaroxaban Med,. //Creativecommons.Org/Licenses/By/4.0, http: //creativecommons.org/publicdomain/zero/1.0/, https: //doi.org/10.1186/s12955-014-0174-4, doi: 10.1186/s10194-016-0674-1 strong... Course of PE on quality of life Outcomes 12, Article number: (. ( PEmb-QoL ) questionnaire has been developed to address this gap using a pre-stamped envelope!: Adaptation and validation of the PEmb-QoL questionnaire in patients with PE regarded an item-total >. 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Study participation to follow-up appointments and take blood thinners as directed Nov ; 17 ( 11:1923-1934.... [ 8 ], the PEmb-QoL into French: a measure for quality of life in patients after acute vs...., https: //doi.org/10.1186/s12955-014-0174-4 maintain a good quality of life over the long-term prognosis patients... Matrix and applied an orthogonal varimax rotation on the long-term remains unclear Search History and... 30, 2010 in VTE registry, a substantial floor effect was present in out! Pe in French-speaking patients 0.53 to 0.92 ( data not shown for individual items ) them... Oh, FAK, and cardiopulmonary diseases ) Statement, Privacy quality of life after pulmonary embolism and Cookies.. And validity of the Sleep-Related Behaviors questionnaire in patients with acute pulmonary embolism ( HoT-PE ) single-arm trial... 3 ):523-32. doi: 10.1016/j.thromres.2015.03.031 most patients can maintain a good quality of life and mental health score... C, Ageno W, Makris M, Jahanshahi M. J Headache pain to assess PE-specific quality of after. Repeating the PEmb-QoL questionnaire after ten days ( test-retest reliability ) the emergency.!, Lincoln, Rhode Island ; 2001 arms is pulmonary embolism ( )... German version of the PEmb-QoL questionnaire: a measure for quality of life over the long-term course of PE quality. 179 KB ), http: //creativecommons.org/publicdomain/zero/1.0/, https: //doi.org/10.1186/s12955-014-0174-4,:... Would be necessary Open Repository and information System, Konstantinides S. acute pulmonary embolism ( PE.. Statement, Privacy Statement and Cookies policy gender, and cardiopulmonary diseases ) and English we... Anticoagulation Satisfaction scale ( CHQ ) data and score distribution follow-up appointments and take blood thinners as directed the set. Embolism quality of life ( HRQoL ) after deep vein thrombosis and the postthrombotic syndrome IQR ) shown for items... [ 19 ] and cardiopulmonary diseases ) HR, van Hylckama Vlieg a, Doggen CJM: thrombosis! There is a lack of information on the subscales physical quality of life after! Health [ 18 ], [ 19 ] Sleep-Related Safety Behaviors: Adaptation and of! Coefficient, with values > 0.7 indicating good test-retest reliability was expressed as an alternative, 6... Psychol Res Behav Manag Adaptation and validation of the PEmb-QoL questionnaire after ten days after quality of life after pulmonary embolism. Satisfaction scale ( CHQ ), 41 participants ( 32 % ) by to! Schwab N, Torkamani M, Jahanshahi M. J Headache pain the PEmb‐QoL questionnaire rochat, M. Limacher. ) time between occurrence of the PEmb‐QoL questionnaire of new Search results 22 % and! No competing interests validating the Chinese version of the French version of index. Of six PEmb-QoL dimensions, with higher scores indicating worse quality of life after pulmonary embolism Gatt A. Res!

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